Ongoing projects
Epilepsy Surgery Database – PrImary investigator: M. Scott Perry, M.D.
Past projects
Posters/Abstracts
Child Neurology Society Meeting 2019
Collaborating to Improve Epilepsy Surgical Care in Children: The Pediatric Epilepsy Research Consortium (PERC) Surgery Subgroup
View poster
American Epilepsy Society Meeting 2019
Characteristics of Patients Referred for Pediatric Epilepsy Surgery Evaluation in the US: Early Findings from the PERC (Pediatric Epilepsy Research Consortium) Epilepsy Surgery Subgroup
View poster
Time to referral for epilepsy surgery evaluation is longer in older children with intractable epilepsy – a potential opportunity for improvement.
View poster
American Epilepsy Society Meeting 2020
Factors Leading to >2 Antiseizure Medication Trials Prior to Epilepsy Surgery Referral in Children
View poster
Initial vs. Repeat Epilepsy Surgery Evaluation for Children in the US: Findings from the PERC (Pediatric Epilepsy Research Consortium) Epilepsy Surgery Subgroup
View poster
American Epilepsy Society 2021
Racial and Ethnic Disparities in Pediatric Epilepsy Surgery
View poster
Epilepsy Surgery in Tuberous Sclerosis Complex. Results from Pediatric Epilepsy Research Consortium (PERC) Epilepsy Surgery Database
View poster
Responsive Neurostimulation in Pediatric Refractory Epilepsy: Findings from the PERC (Pediatric Epilepsy Research Consortium) Epilepsy Surgery Subgroup – poster link pending
Comparing characteristics and outcome of palliative and definitive pediatric epilepsy surgery patients using the Pediatric Epilepsy Research Consortium (PERC) Surgery Database
View poster
Initial success and impact of building a collaborative among pediatric neuropsychologists
View poster
American Epilepsy Society 2022
A Multi-Institutional Comparison of Contemporary Surgical Approaches and Outcomes of Corpus Callosotomy – Coming in December 2022
The Impact of Presurgical Diagnostic Testing on Surgical Decision Making in Pediatric MRI-negative Drug-Resistant Epilepsy – Coming in December 2022
Stereoencephalography Planning for Phase 2 Monitoring and Risk for Hemorrhage – Coming in December 2022
Outcomes and Prognostic Factors of Pediatric Frontal Lobe Epilepsy Surgery: A Multi-center Study – Coming in December 2022
Special Issue: Seminars in Pediatric Neurology: Epilepsy Surgery Oct 2021
Seminars in Pediatric Neurology | Pediatric Epilepsy Surgery | ScienceDirect.com by Elsevier
Surgery Workgroup-Neuropsychology – MMB – Special Interest Group
We are a multi-site collaborative focused on maintaining a registry for epilepsy surgery outcomes. While seizures are a critical outcome, there is increasing recognition that outcomes beyond seizure control is critical to children and their families when evaluating the impact of epilepsy and its treatments. Cognitive and behavioral outcomes are the focus of the neuropsychology group. In addition, this collaborative not only advances science but also fosters growth and active collaboration within a network of pediatric epilepsy clinicians.
Funding
Funding for PERC Surgery Workgroup-Neuropsychology provided in part by the Pediatric Epilepsy Research Foundation (PI Berl) (http://pediatricepilepsyresearchfoundation.org/grants)
Current projects
- Ongoing project: Online registry of pediatric epilepsy surgery and outcomes
Past projects
- AES Dec 2021:
Berl et al (2021). Initial Success and Impact of Building a Collaborative Among Pediatric Neuropsychologists - AES Dec 2022:
Patrick et al (2022). Not all neuropsychological tests are created equal: Memory performance differences in patients with pediatric epilepsy - INS Feb 2023:
Almy et al (submitted). The Importance of Executive Functioning for Academic Achievement Among a National Sample of Children with Epilepsy - Berl et al (submitted). Latent Wechsler Profiles in Presurgical Pediatric Epilepsy
- Hodgest et al (submitted). Assessing Differences in Academic Achievement Among a National Sample of Children with Epilepsy Before and During the COVID-19 Pandemic
- Moshe et al (submitted). Pediatric Frontal Lobe Epilepsy: Fine Motor Skills are Associated with Executive Dysfunction and ADHD Symptomatology