The Pediatric Epilepsy Research Consortium (PERC) is a national collaboration of more than 40 pediatric epilepsy programs. We aim to provide a network and infrastructure to facilitate collegial, collaborative, practice-changing research to improve the care of children with epilepsy. We are particularly committed to providing opportunities for junior investigators to join ongoing efforts and develop research skills.

Recent Research Projects

RIKEE: Rational Intervention of KCNQ2 Epileptic Encephalopathy

RIKEE Registry Flyer

Evaluation, Diagnosis, and Treatment of Dravet Syndrome: A North American Consensus

Developing standards of care and identifying priority areas for research using a modified Delphi process.  This project incorporated expert opinion from providers and patient’s families in North America to identify areas of consensus regarding evaluation of Dravet syndrome, use of genetic testing, treatment and ongoing management.

Early Onset Epilepsy Database

A prospective study of all early life epilepsies focused on their evaluations, diagnoses, treatments, and early outcomes.  Children from birth to 3 years of age with new onset epilepsy were followed prospectively for one year.

Prevent West Syndrome

A discovery project to determine if Infantile Spasms/ West Syndrome can be predicted based on EEG findings in high risk infants.

Prospective Infantile Spasms Database

A prospective study of the evaluation, diagnosis and treatment of infantile spasms in the US.